We are here in DC participating in the Children's Long Covid study at NIH Children's Hospital. What we know so far...his heart and lungs are healthy. His blood is getting oxygenated properly. This is great news!
There is still a lot that we have not seen the results for but all the testing is done for this trip. Everyone has been so nice and extremely helpful. Very validating after a year and a half of pushing for help. I asked Hyrum what he thought about seeing the doctors here in D.C. He said, "Mom, they all believed me. They believe what I say." How do you put a price on Hyrum being validated? If we gain nothing else from this trip we gained the most important thing. No matter what any other doctor tells him, he knows that there are a whole bunch who believe him.
So grateful we are here. Hoping that they learn how to help all children who are experiencing this.
It has wiped him out. Me too!! Lots of time resting so far.
Hoping to see more in the next couple of days.
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