Alma Lake
Trying to Keep Things Normal When They're Not
His school has taught me a lot about the whole child, and the importance of nurturing every part of the child. Through all of this, we...
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A Bit About Us
Since 2018, our years have been full of injury, illness, recovery, setbacks, and more recovery. I suffered from my 6th major concussion which led to permanent damage, also called post-concussion syndrome. My son, after coming down with Covid-19 in October 2020, went into Long Covid, now known as Post-acute Sequelae of Covid-19 (PASC). He spent almost a year in physical and occupational therapy, as well as dealing with continuing pain, neuro fatigue, and exertion fatigue. As part of his PASC, he has been diagnosed with Chronic Fatigue Syndrome, post-exertional malaise, orthostatic intolerance, and amplified pain syndrome. We have learned that life is more than our illness and injury. Through the pain, you can still find joy and have a life full of love, family, friends, and a lot of laughter.
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Alma Lake
Coming Full Circle - Sorta
Want to know what the first specialist we saw when Hyrum collapsed at his school in November 2020 was? You guessed correctly if you said...
Alma Lake
Finally! The Sleep Study
We started trying to make this happen in May. The Puliminologists said they are overwhelmed with children even more than normal for the...
Alma Lake
Pumpkins, Pumpkins Everywhere
He is a definite problem solver. How do you go trick-or-treating when you can barely walk? Easy, you dress up as a pumpkin! Pumpkins...
Alma Lake
Down the Same Steep Road
There are moments or days you do not realize how beautiful they are until much later. September 18th was one of those days. Hyrum got to...
Alma Lake
First Days and New Hope
Excited for the first day of 5th grade!! We had a lot of ups and downs over the summer, but Hyrum has had a good couple of weeks. Hoping...
Alma Lake
What Post-Exertional Malaise Look Like
This is what exertion fatigue (post-exertional malaise) looks like. Three days later and he is still completely wiped out. Hoping...
Alma Lake
Do What You Can, Until You Can't
It is difficult for those on the outside to see what our days are like. This picture really encompasses so many emotions. Having a...
Alma Lake
Looking for Answers in D.C.
We are here in DC participating in the Children's Long Covid study at NIH Children's Hospital. What we know so far...his heart and lungs...
Alma Lake
Celebrating a Win
These dark circles tell a much bigger story then just his journey. If you could see picture after picture like I have of children with...
Alma Lake
Covid Keeps Pounding on Our Door
The empty cool pool was a perfect way to enjoy the weekend taking his sister back to college for the spring semester. Laughter and...
Alma Lake
Hope for More Answers
Finally some good news!!! Hyrum got accepted into a study for Children with Long Covid! It’s in Washington D.C. at Children’s National...
Alma Lake
Where are we now?
We are still in the midst of exhausting and endless days of setbacks, progress, and more setbacks with no realistic end in sight. Our...
Alma Lake
Done But Not Well...Yet
We hit a big milestone! Last day of Physical Therapy last week. He just needs to keep being a kid and keep doing what they have taught...
Alma Lake
Setbacks Again
This roller coaster ride of illness is way too cruel. We went from a great day at compitetions two weeks ago to having two weeks full of...
Alma Lake
One Week Until Chaos
No, something was not wrong with him before he got sick. No, he did not have underlying conditions. No, he was physical fit and active....
Alma Lake
Kids Don't Get Sick. Right!?
This was taken trying to document the progression on his problems with balance and tremors. Still hearing that it must be anxiety. ...
Alma Lake
Physical Therapy Intake
We had our first physical therapy appointment yesterday. It went really well. It was a huge confidence builder for him in his abilities....
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